Latest Blog Posts

Latest Blog Posts

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  • Not Your Prop: When Photo Ops Replace Policy

    Not Your Prop: When Photo Ops Replace Policy

    Let’s talk about the staged photo op that took place at The Office of Health and Human Services with RFK Jr. on World Down Syndrome Day. Ironically, it is the exact point I was making about sock photos in my previous blog. I had coffee with a dear friend this past week, and we discussed […]

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  • We Don’t Want Sock Pictures

    We Don’t Want Sock Pictures

    In this post, I discuss the importance of action beyond socks.

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  • Standing with Researchers

    Standing with Researchers

    My Remarks at the Stand Up for Science Protest Rally

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  • Is Dissent Allowed?

    Is Dissent Allowed?

    The Atlantic is one of the most respected journalistic institutions out there. Dismissing it as fake news just because it challenges your narrative is absurd. The relentless cries of “media bias” and “free speech suppression” have become nothing more than performative noise. This story was gifted to the Atlantic through mistakes made by this administration. […]

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  • The United Discrimination in America

    This post is about the discrimination people with disabilities face and how bigots in this country are now emboldened. It talks about how hard that is for parents in this community right now.

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  • Join our Advocacy Efforts!

    Our children bring immense beauty and value to the world, yet they are too often underestimated and hindered by policies that fail to recognize their potential. Whether you have had to battle for your child’s right to a free and fair education, a spot in daycare, behavior health services, medical equipment, therapies, or for meaningful […]

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  • Disabling Trump’s Rhetoric

    Yesterday, Donald Trump stood in front of the nation and blamed disabled people for a tragic plane crash. Instead of discussing the victims, their families, and how to prevent such tragedies in the future, advocates were forced to process yet another attack on our community. In just two weeks, I have had to defend my […]

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  • The Charter School Epidemic

    If you follow our journey on social media, you know that it has not been easy to find the right school for Sienna’s education. We have lived a thousand lives since kindergarten. I have learned so much about our broken system, and through these lived experiences I have gained first hand knowledge. I feel a […]

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  • The Push and Pull of Advocacy

    I turn my camera off after recording the coach going through the routine for the cheer competition and look back at Sienna. She has melted to the ground and her eyes are puddling with tears. What had I missed?I step towards her and ask her what’s wrong as the tears stream down her face. I […]

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